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1.
JMIR Res Protoc ; 11(10): e40218, 2022 Oct 28.
Artículo en Inglés | MEDLINE | ID: mdl-36306158

RESUMEN

BACKGROUND: Children with disability face long wait times for rehabilitation services. Before the COVID-19 pandemic, telehealth adoption was low across pediatric rehabilitation. Owing to the COVID-19 pandemic restrictions, pediatric therapists were asked to rapidly shift to telehealth, often with minimal training. To facilitate the behavior changes necessary for telehealth adoption, provision of appropriate evidence-based training and support is required. However, evidence to support the effective implementation of such training is lacking. The successful real-world implementation of a training intervention and program of support (TIPS) targeting pediatric therapists to enhance the adoption of family-centered telerehabilitation (FCT) requires the evaluation of both implementation and effectiveness. OBJECTIVE: This study aimed to evaluate TIPS implementation in different pediatric rehabilitation settings and assess TIPS effectiveness, as it relates to therapists' adoption, service wait times, families' perception of service quality, and costs. METHODS: This 4-year, pan-Canadian study involves managers, pediatric occupational therapists, physiotherapists, speech-language pathologists, and families from 20 sites in 8 provincial jurisdictions. It will use a multimethod, prospective, hybrid type 3 implementation-effectiveness design. An interrupted time series will assess TIPS implementation. TIPS will comprise a 1-month training intervention with self-paced learning modules and a webinar, followed by an 11-month support program, including monthly site meetings and access to a virtual community of practice. Longitudinal mixed modeling will be used to analyze indicators of therapists' adoption of and fidelity to FCT collected at 10 time points. To identify barriers and facilitators to adoption and fidelity, qualitative data will be collected during implementation and analyzed using a deductive-inductive thematic approach. To evaluate effectiveness, a quasi-experimental pretest-posttest design will use questionnaires to evaluate TIPS effectiveness at service, therapist, and family levels. Generalized linear mixed effects models will be used in data analysis. Manager, therapist, and family interviews will be conducted after implementation and analyzed using reflective thematic analysis. Finally, cost data will be gathered to calculate public system and societal costs. RESULTS: Ethics approval has been obtained from 2 jurisdictions (February 2022 and July 2022); approval is pending in the others. In total, 20 sites have been recruited, and data collection is anticipated to start in September 2022 and is projected to be completed by September 2024. Data analysis will occur concurrently with data collection, with results disseminated throughout the study period. CONCLUSIONS: This study will generate knowledge about the effectiveness of TIPS targeting pediatric therapists to enhance FCT adoption in pediatric rehabilitation settings, identify facilitators for and barriers to adoption, and document the impact of telehealth adoption on therapists, services, and families. The study knowledge gained will refine the training intervention, enhance intervention uptake, and support the integration of telehealth as a consistent pediatric rehabilitation service option for families of children with disabilities. TRIAL REGISTRATION: ClinicalTrials.gov NCT05312827; https://clinicaltrials.gov/ct2/show/NCT05312827. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): PRR1-10.2196/40218.

2.
BMC Pediatr ; 22(1): 375, 2022 06 29.
Artículo en Inglés | MEDLINE | ID: mdl-35764983

RESUMEN

BACKGROUND: Child-oriented goal-setting in pediatric rehabilitation may improve child motivation, engagement in therapy, child outcomes related to therapy, and service delivery efficiency. The primary objective of this trial is to determine the effectiveness of a principles-driven, child-focused approach to goal-setting, Enhancing Child Engagement in Goal-Setting (ENGAGE), on pediatric rehabilitation outcomes compared to usual practice. The three secondary objectives are to 1) compare costs and secondary outcomes of the ENGAGE approach to usual practice, 2) determine the influence of child, parent and therapist characteristics on child engagement in therapy and rehabilitation outcomes, and 3) identify barriers and facilitators to the implementation of ENGAGE. METHODS: This research protocol describes a pragmatic, multi-site, cluster, effectiveness-implementation (hybrid type 1 design) randomized controlled trial. Therapists (n = 12 clusters of two therapists) at participating sites (n = 6) will be randomized to 1) the ENGAGE intervention group, or 2) usual care (control) using a computer-generated, permuted-block randomization sequence with site as a stratification variable designed by a statistician (RR). Each therapist will recruit four children 5-12 years old with neurodevelopmental conditions (n = 96), who will receive ENGAGE or usual care, according to therapist group allocation. ENGAGE therapists will be trained to use a 'toolbox' of evidence-driven, theory-informed principles to optimize child and parent motivation, engagement in the goal-setting process, and performance feedback strategies. Outcomes include goal performance (primary outcome), engagement in therapy, functional abilities, participation, and parent and child quality of life. Qualitative interviews with children, parents, ENGAGE therapists, and managers will explore challenges to implementation and potential mitigation strategies. Mixed effects multiple linear regression models will be developed for each outcome to assess group differences adjusted for clustering. A cost-effectiveness analysis will combine cost and a measure of effectiveness into an incremental cost-effectiveness ratio. Qualitative data on implementation will be analyzed inductively (thematic analysis) and deductively using established implementation science frameworks. DISCUSSION: This study will evaluate the effects of collaborative goal-setting in pediatric rehabilitation and inform effective implementation of child-focused goal-setting practices. TRIAL REGISTRATION: NCT05017363 (registered August 23, 2021 on ClinicalTrials.gov).


Asunto(s)
Objetivos , Calidad de Vida , Actividades Cotidianas , Niño , Preescolar , Humanos , Motivación , Estudios Multicéntricos como Asunto , Padres , Ensayos Clínicos Controlados Aleatorios como Asunto
3.
JMIR Form Res ; 5(9): e23877, 2021 09 16.
Artículo en Inglés | MEDLINE | ID: mdl-34528886

RESUMEN

BACKGROUND: The gap between research and its practical application in community settings limits its impact on public health. Closing this gap has the potential to improve the well-being of underserved groups, such as children with disabilities. Mobile health has the potential to improve access to community resources and support for underserved populations, thereby encouraging improved health behaviors. OBJECTIVE: In this feasibility pilot study, we describe the development of the mobile app Jooay. Jooay was developed in partnership with stakeholders to facilitate access to leisure and physical activity community programs for children and youth with disabilities. We also reflect on the lessons learned throughout the implementation process that are relevant for improving the health behaviors of children with disabilities. METHODS: We used a participatory action research approach to develop the app. We also administered a survey to current Jooay users and analyzed various app usage indicators to explore use patterns, user feedback, and preferences. Finally, we critically appraised the implementation process through a best practices for implementation research framework. RESULTS: We developed a product that responds to users' identified need to find information and follows accessibility and user-centered design standards. The analysis of usage data revealed that access to the Jooay app is concentrated in urban areas. Perceptions, attitudes, and information needs varied according to the type of user. The use of the mobile app changed over time, and usage decreased after the app was downloaded, indicating a need for the sustained engagement of app users. Users found value in the ability to identify activities that they would not otherwise know about. However, app use alone was not sufficient to improve participation. Although the app was developed based on users' active input in multiple iterations, we encountered challenges with survey recruitment and attrition, suggesting the need for more seamless and engaging means for collecting data within this population. CONCLUSIONS: Interactions between users and the app can sustain user engagement and behavior change. We will improve the app's next iterations by using the information gained from this study to conduct a larger study to assess the relationship among social and material deprivation, urban design, and access to inclusive and adaptive leisure programs. This study will inform the improvement of app listings to improve the use of Jooay by different user groups and promote health through mobile apps for marginalized groups.

4.
Cochrane Database Syst Rev ; 8: CD012924, 2021 08 03.
Artículo en Inglés | MEDLINE | ID: mdl-34343340

RESUMEN

BACKGROUND: Children and adolescents diagnosed with cancer are at high risk of experiencing severe side effects from cancer treatment, many of which are amenable to physical therapy. These side effects can negatively impact a child's quality of life and ability to participate in daily activities (e.g. play and attendance at school). Researchers have evaluated physical therapy interventions in children with cancer and childhood cancer survivors. However, factors such as small sample sizes, varying intervention protocols and differences in cancer types among trials make it difficult to draw conclusions about efficacy. OBJECTIVES: The primary aim of this review was to evaluate the efficacy of physical therapy interventions - with a specific focus on symptom relief and compensation of therapy-related side effects - on the quality of life of children and adolescents diagnosed with cancer. Participants must be between the ages of 0 and 19 years at the time of the physical therapy intervention study. The intervention may occur prior to, during or following cancer treatment. The intervention must be compared to a control group of children receiving standard care, no physical therapy intervention or a comparison intervention. We have excluded general physical exercise studies where the primary aim was to improve physical fitness through aerobic, anaerobic, resistance exercise or combined physical exercise training regimens (i.e. combined aerobic and resistance exercise regimens). We have also intended to record the occurrence of any adverse effects resulting from physical therapy interventions. The secondary aims were to evaluate the efficacy of physical therapy on impairments of pain, peripheral neuropathy, balance, gait, functional abilities and mobility, motor function and performance, range of motion, strength and fatigue. SEARCH METHODS: We searched CENTRAL, MEDLINE, Embase, CINAHL, PEDro, ongoing trial registries, conference proceedings and the reference lists of relevant studies and reviews in March 2020. We also contacted oncology rehabilitation researchers working in paediatrics in March 2020 to identify additional studies. SELECTION CRITERIA: The review included randomised controlled trials (RCTs), cross-over trials, and controlled clinical trials (CCTs) that compared the effects of physical therapy interventions to a control group, and involved children and adolescents diagnosed with cancer between the ages of 0 and 19 years at the time of the intervention. We excluded studies examining general physical exercise interventions where the primary aim was to improve physical fitness through aerobic exercise, resistance exercise or combined physical exercise training regimens (i.e. combined aerobic and resistance exercise regimens). DATA COLLECTION AND ANALYSIS: We used standard methodological procedures expected by Cochrane. MAIN RESULTS: We found no RCTs, cross-over trials or CCTs comparing the effects of physical therapy interventions with a focus on symptom relief and compensation of therapy-related side effects for children and adolescents between the ages of 0 and 19 years. AUTHORS' CONCLUSIONS: Results demonstrate that the evidence to date is inadequate to inform clinical practice. Recommendations for future research include the need for large-scale, high-quality designs that examine: (1) paediatric populations with same cancer types; (2) similar intervention protocols; (3) long-term outcomes; (4) physical therapy interventions (e.g. electrophysical modalities and sensory interventions); and (5) outcomes commonly impaired in children with cancer (e.g. peripheral neuropathy and gait deficits).


Asunto(s)
Ejercicio Físico , Neoplasias , Adolescente , Adulto , Niño , Preescolar , Terapia por Ejercicio , Humanos , Lactante , Recién Nacido , Neoplasias/terapia , Aptitud Física , Modalidades de Fisioterapia , Calidad de Vida , Adulto Joven
5.
Physiother Can ; 73(1): 66-75, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-35110825

RESUMEN

Purpose: Although the importance of increased physical activity for children with disabilities is widely acknowledged, formal links between rehabilitation practitioners and community physical activity programmes are often lacking. The role of physiotherapists in the promotion of community physical activity is also often unclear. This study set out to describe the beliefs, knowledge, and practices of Canadian physiotherapists related to promoting community-based physical activity for children with disabilities. Method: We used a mixed-methods design: a survey of Canadian physiotherapists and qualitative focus group interviews with physiotherapists. Results: A total of 116 therapists participated in the survey. Of these, 80 (69.0%) considered the promotion of community-based physical activity programmes to be a physiotherapy role, and 89 (76.7%) recommended programmes to families. Therapists with less than 6 years of paediatric experience were less likely to recommend programmes to families (χ2 4 = 40.46, p < 0.001). Qualitative analysis resulted in three themes: (1) lack of clarity regarding the physiotherapy role, (2) "it's not easy" - challenges related to community-based physical activity promotion, and (3) one size does not fit all. Conclusions: Various factors shaped physiotherapists' ability to promote community physical activity, specifically their knowledge, practice setting expectations, and beliefs about their role. Concerted efforts to promote community-based physical activity may increase community capacity to support all children in physical activities.


Objectif : l'importance d'accroître l'activité physique chez les enfants qui ont des incapacités est largement reconnue, mais il n'existe souvent pas de liens officiels entre les praticiens de la réadaptation et les programmes d'activité physique communautaires. Le rôle des physiothérapeutes dans la promotion de l'activité physique est souvent flou. La présente étude vise à décrire les convictions, les connaissances et les pratiques des physiothérapeutes canadiens à l'égard de la promotion de l'activité physique communautaire pour les enfants ayant des incapacités. Méthodologie : méthodologie mixte: sondage auprès des physiothérapeutes canadiens et groupes de travail qualitatifs composés de physiothérapeutes. Conclusion : au total, 116 thérapeutes ont participé au sondage. De ce nombre, 80 (69,0%) considéraient que la promotion des programmes d'activité physique communautaires faisait partie du rôle de la physiothérapie, et 89 (76,7%) recommandaient des programmes aux familles. Les thérapeutes qui avaient moins de six ans d'expérience en pédiatrie étaient moins susceptibles de recommander des programmes aux familles (χ2 4 = 40,46, p < 0,001). L'analyse qualitative a fait ressortir trois thèmes : 1) manque de clarté quant au rôle de la physiothérapie, 2) « ce n'est pas facile ¼ : difficultés à promouvoir l'activité physique communautaire et 3) une solution unique ne convient pas à tous. Conclusions : divers facteurs influaient sur la capacité des physiothérapeutes à promouvoir l'activité physique communautaire, notamment leurs connaissances, les attentes du milieu de pratique et leurs convictions vis-à-vis de leur rôle. Par des efforts concertés pour promouvoir la santé communautaire, il serait possible d'accroître la capacité de la communauté à soutenir tous les enfants dans le cadre d'activités physiques.

6.
Disabil Rehabil ; 43(5): 726-738, 2021 03.
Artículo en Inglés | MEDLINE | ID: mdl-31248284

RESUMEN

AIM: To describe research on outcomes associated with early Ankle Foot Orthosis (AFO) use, AFO use patterns, and parent and clinician perspectives on AFO use among young children with cerebral palsy. METHOD: Arksey and O'Malley's five-stage method was used to conduct a scoping review. MEDLINE (Ovid), PubMed, CINAHL, Cochrane Database of Systematic Reviews, EMBASE, PEDro, Web of Science and Scopus were searched for studies evaluating AFO use with children under the age of six years. Descriptive information was extracted and outcomes categorized according to the International Classification of Functioning, Disability and Health (ICF). Quality assessments were conducted to evaluate methodological rigor. RESULTS: Nineteen articles were included in the review; 14 focused on body functions and structures, seven on activity level outcomes and no studies addressed participation outcomes. Evaluations of the effects of AFOs on gross motor skills other than gait were limited. Overall, the body of evidence is comprised of methodologically weak studies with common threats to validity including inadequate descriptions of study protocols, AFO construction, and comparison interventions. CONCLUSION: Research evaluating the effects of AFOs on age-appropriate, functional outcomes including transitional movements, floor mobility and participation in early childhood settings is needed to inform practice regarding early orthotic prescription. Implications for rehabilitationLack of rigorous evidence about the effects of AFOs in young children limits the ability of research to guide practice in pediatric rehabilitation.More rigorous research that evaluates a broader range of age-appropriate outcomes, including those focused on participation in meaningful activities, could further inform clinical practice.While clinicians often discuss expectations and goals with individual families, qualitative research that provides more insight into the experiences of families could guide AFO prescription and monitoring practices.


Asunto(s)
Parálisis Cerebral , Ortesis del Pié , Tobillo , Fenómenos Biomecánicos , Niño , Preescolar , Pie , Marcha , Humanos , Revisiones Sistemáticas como Asunto
7.
Phys Occup Ther Pediatr ; 40(6): 637-650, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-32249646

RESUMEN

PURPOSE: To provide insight into the experiences of power soccer players and their parents to inform rehabilitation practice. METHODS: Primary data for this Interpretive Description study were individual interviews with five power soccer athletes, ranging from 11 to 17 years of age, and three parents of power soccer players. Observational field notes were also used. RESULTS: Five inter-related themes were developed: 1) Level playing field, 2) I am an athlete, 3) Important "life lessons" are gained through team sports, 4) The value of belonging to a community, and 5) Role of the rehabilitation community in supporting power mobility sports. CONCLUSIONS: Findings of this study demonstrate the benefits and challenges of power sport participation. The results encourage therapists to share information about sport opportunities with families and to consider a broad range of contexts when assessing for power mobility.


Asunto(s)
Niños con Discapacidad/psicología , Paratletas/psicología , Padres/psicología , Fútbol , Silla de Ruedas , Adolescente , Niño , Suministros de Energía Eléctrica , Femenino , Humanos , Masculino
8.
JPEN J Parenter Enteral Nutr ; 44(3): 407-418, 2020 03.
Artículo en Inglés | MEDLINE | ID: mdl-31328301

RESUMEN

BACKGROUND: Malnutrition is a common complication in children with chronic diseases. Sarcopenia is one component of malnutrition, characterized by reduced skeletal muscle mass (SMM) and muscle function. The presence of sarcopenia is associated with adverse outcomes in children. Although there is growing research interest in sarcopenia, no review has been done on this novel concept in pediatrics. The purpose of this review was to explore current evidence in sarcopenia with and without obesity and to evaluate the knowledge gaps in the assessment of childhood sarcopenia. METHODS: A total of 12 articles retrieved from PubMed or Web of Science databases were included. RESULTS: Limited studies have elucidated sarcopenia in pediatrics. Challenges in sarcopenia assessment include heterogeneity in definition and absence of standardized body composition methods used to measure SMM and muscle function tests. There is a lack of age-specific and gender-specific normative data for SMM, particularly in young children and infants. None of the studies incorporated muscle function assessment, causing potential bias and misclassification of sarcopenia. The research in childhood sarcopenia is also hampered by low study quality, limited number of outcomes-based research, and lack of longitudinal data. CONCLUSION: Consensus needs to be reached in methodological approaches in sarcopenia diagnosis, body composition measurements, and age-appropriate muscle function tests in pediatrics. Careful considerations on growth, neurocognitive status, and factors influencing development in various clinical populations are warranted. Early identification of sarcopenia is crucial to enable targeted treatment and prevention to be carried out across the pediatric clinical populations.


Asunto(s)
Trastornos de la Nutrición del Niño , Desnutrición , Pediatría , Sarcopenia , Composición Corporal , Niño , Preescolar , Humanos , Desnutrición/diagnóstico , Músculo Esquelético , Sarcopenia/diagnóstico
9.
BMC Pediatr ; 19(1): 171, 2019 05 28.
Artículo en Inglés | MEDLINE | ID: mdl-31138161

RESUMEN

BACKGROUND: To evaluate the accuracy of motor assessment tools listed in Fetal alcohol spectrum disorder: a guideline for diagnosis across the lifespan (Canadian Guideline) for the purpose of fetal alcohol spectrum disorder (FASD) diagnosis. Specifically, we aimed to determine: 1) diagnostic accuracy of motor assessment tools and subtests; 2) accuracy of multiple subtests versus total scores; and 3) accuracy of alternate cut-offs. METHODS: Cross-sectional diagnostic study of 63 children aged 6-17 years. Diagnostic accuracy and alternate cut-offs were calculated for the Movement Assessment Battery for Children, 2nd edition (MABC-2), Bruininks-Oseretsky Test of Motor Proficiency, 2nd edition Short Form (BOT-2SF) and Beery-Buktenica Developmental Test of Visual Motor Integration, 6th edition (BeeryVMI-6). RESULTS: The MABC-2 total motor score was more sensitive (0.30; 95% CI 0.17-0.46; p < 0.01) to motor impairment in the presence of FASD than the BOT-2SF (0.02; 95% CI 0.00-0.12) at the 2nd percentile (-2SD). The MABC-2 total motor score was more accurate than any combination of subtest scores. The Motor Coordination subtest of the BeeryVMI-6 (BeeryMC) at the 5th percentile (- 1.5SD) (sensitivity 0.68, specificity 0.90) was the most accurate subtest. CONCLUSIONS: The BOT-2SF was an inaccurate assessment tool for FASD diagnosis. The MABC-2 total motor score was the most accurate using current guidelines, though its sensitivity was still low. Further investigation into inclusion of single subtests and/or using a less conservative cut-off in the Canadian Guideline is warranted.


Asunto(s)
Trastornos del Espectro Alcohólico Fetal/diagnóstico , Trastornos de la Destreza Motora/diagnóstico , Análisis y Desempeño de Tareas , Adolescente , Niño , Estudios Transversales , Femenino , Trastornos del Espectro Alcohólico Fetal/fisiopatología , Guías como Asunto , Humanos , Masculino , Destreza Motora , Embarazo , Efectos Tardíos de la Exposición Prenatal/diagnóstico , Efectos Tardíos de la Exposición Prenatal/fisiopatología , Sensibilidad y Especificidad
10.
Phys Occup Ther Pediatr ; 39(6): 598-613, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-31144554

RESUMEN

Modified toy cars for have gained popularity as a tool for early exposure to power mobility. Aims: to (1) determine modifications required, (2) describe frequency of home and community use, (3) describe assistance and encouragement provided, child's motivation and enjoyment of the car, and (4) explore therapist and parent experiences with the cars. Methods: This mixed-methods case series included children aged 13-58 months (n = 5) with cerebral palsy (n = 4) and arthrogryposis and hypotonia (n = 1). Four children received cars and follow-up visits from therapists in their homes. Quantitative data were collected using a family driving record. Qualitative interviews were conducted with parents (n = 5) and therapists (n = 2). The data management strategy described by Knafl (1988) facilitated qualitative data analysis. Results: One child could not be adequately supported; she did not receive a car. Driving frequency ranged from 1.3 to 2.9 days per week, 12-63 min in duration. Qualitative analysis resulted in four themes: (1) A gentle introduction to power mobility, (2) It's more than just mobility, (3) You just need to try it, and (4) Cars are simple tools. Conclusions: Modified toy cars are feasible for early exposure to power mobility with young children with physical disabilities who do not require extensive seating modifications.


Asunto(s)
Automóviles , Niños con Discapacidad/rehabilitación , Limitación de la Movilidad , Juego e Implementos de Juego , Preescolar , Femenino , Humanos , Lactante , Masculino
11.
Phys Sportsmed ; 47(4): 463-470, 2019 11.
Artículo en Inglés | MEDLINE | ID: mdl-31122104

RESUMEN

Objective: Individuals with rheumatoid arthritis (RA) have increased risk of cardiovascular disease (CVD). Lifestyle factors such as prolonged sedentary behavior (SB) and reduced physical activity (PA) may heighten the risk of CVD. The objective of the study was to investigate the role of SB and PA as predictors for long-term CVD risk in RA patients.Methods: A subsample of 273 people diagnosed with RA was extracted from the 2003-2006 National Health and Nutrition Examination Survey and included in this cross-sectional study. Valid accelerometry data were categorized into sedentary behavior, very light, light, and moderate-to-vigorous physical activity. Functional limitations were assessed using a physical function questionnaire. The Framingham risk score (FRS) was used to calculate 10-year CVD risk. Regression models were used to examine the relationships between SB, PA, and 10-year CVD risk while controlling for potential confounders.Results: Participants spent an average of 9 h/day sedentary, 4 h in very light PA, 1 h in light PA, and 0.4 h in moderate-to-vigorous PA. Greater sedentary time was associated with higher 10-year CVD risk (p= 0.019). Increased daily PA, at all intensities, was inversely associated with 10-year CVD risk (p< 0.01). In the fully adjusted regression model, associations between 10-year CVD risk and SB (ß = 0.31, R2 = 0.27, p< 0.01), very light PA (ß = -0.19, R2 = 0.26, p< 0.01), light PA (ß = -0.16, R2 = 0.25, p< 0.01), and moderate-to-vigorous PA (ß = -0.15, R2 = 0.25, p< 0.01) remained significant.Conclusions: Strategies for decreasing SB and increasing PA should be explored with individuals with RA in order to decrease long-term CVD risk.


Asunto(s)
Artritis Reumatoide/complicaciones , Enfermedades Cardiovasculares/complicaciones , Ejercicio Físico , Conducta Sedentaria , Acelerometría , Adulto , Enfermedades Cardiovasculares/prevención & control , Estudios Transversales , Femenino , Humanos , Estilo de Vida , Masculino , Persona de Mediana Edad , Factores de Riesgo , Encuestas y Cuestionarios
12.
Phys Occup Ther Pediatr ; 39(6): 567-579, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-31106627

RESUMEN

Background: Increased understanding of the outcomes associated with physical activity and sports has the potential to guide rehabilitation interventions for children and adolescents with disabilities. Aim: To describe research related to group physical activity and sport participation of children and adolescent wheelchair users. Methods: The five-step framework described by Arksey and O'Malley was used to guide the review. Four electronic databases (MEDLINE, CINAHL, SPORTDiscus, and SCOPUS) were searched for relevant literature and selected articles were screened and evaluated for inclusion. Basic article information, study objectives, participant information, methods, outcome measures (quantitative), and themes (qualitative) were extracted from the selected articles. Outcome measures were coded using the domains of the International Classification of Functioning, Disability, and Health. Results: Seventeen articles were included in the review. The quantitative research articles evaluated outcomes related to test/training parameters (n = 2), evaluation of tools/models (n = 6), and biomechanical/physiological/participation profiles of athletes/equipment (n = 5). Four qualitative studies explored perceptions and experiences with participation, social supports, and identity development. No articles focused on power wheelchair sport. Conclusion: Additional research on evaluating outcomes associated with group physical activity and sport participation is needed to inform clinical practice and guide future research.


Asunto(s)
Niños con Discapacidad/rehabilitación , Ejercicio Físico , Deportes , Silla de Ruedas , Adolescente , Niño , Evaluación de la Discapacidad , Humanos
13.
Clin Rehabil ; 33(9): 1515-1526, 2019 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-31072123

RESUMEN

BACKGROUND: Goal setting in paediatric rehabilitation is influenced by shifting parent, sibling, caregiver, and child roles over time and evolving child developmental capacity for participation in the process. A theoretical and evidence-informed approach to goal setting, specific to paediatrics, would provide a framework for goal setting in practice and facilitate systematic evaluation of the effects of goal-setting processes on child and family outcomes. OBJECTIVE: To provide an overview of relevant goal-setting theories and their implications for paediatric rehabilitation. METHODS: Prevalent theories were identified from relevant rehabilitation, motivation, behaviour change, and goal-setting literature. Implications for goal setting in paediatrics are summarized according to goal-setting and action-planning phases: (1) preparation, (2) formulation of goals, (3) formulation of action plan, (4) coping planning, and (5) follow up. RESULTS: Social cognitive theory, self-determination theory, Health Action Process Approach, Mastery Motivation, and goal-setting theory are reviewed. Examples of implications for goal setting include, sharing information with families about the purpose of goal setting; identifying goals that are specific, proximal, challenging, and important to the child; and addressing self-efficacy. CONCLUSION: The theories reviewed have clear implications for paediatric rehabilitation research and practice. They address considerations not typically discussed in adult rehabilitation such as observing children to obtain information about meaningful goals when they are unable to communicate them directly and the importance of establishing flexible processes that will accommodate changing family roles over time. Research is needed to evaluate the effects of goal-setting processes and strategies on outcomes in paediatric rehabilitation.


Asunto(s)
Objetivos , Pediatría , Rehabilitación , Humanos , Motivación , Autonomía Personal , Autoeficacia
14.
Health Promot Perspect ; 8(2): 147-154, 2018.
Artículo en Inglés | MEDLINE | ID: mdl-29744311

RESUMEN

Background: Red blood cell distribution width (RDW) is a biomarker for cardiovascular disease(CVD). RDW is associated with sedentary behavior (SB) and physical activity (PA) in adults.To date, no study has evaluated this association in children. The purpose of this study was to evaluate the association between RDW and SB and PA levels of children and adolescents. Methods: This observational study included data from participants aged 12-20 years in the 2003-2006 National Health and Nutrition Examination Survey (NHANES). SB and PA were measured using accelerometers. Activity levels were classified into intensity categories. Sex specific multivariable regression analyses (adjusted for covariates) were used to explore the associations between SB, PA and RDW. Results: The study included 2143 children and adolescents (1080 boys and 1063 girls). In the fully adjusted regression model for boys, SB was positively associated with RDW (ß =0.116,P=0.004) while moderate PA was negatively associated with RDW (ß =-0.082, P=0.048). In girls, there were no significant associations between activity levels and RDW. Conclusion: This study provides preliminary evidence of the association between SB, moderate intensity PA and RDW in boys, but not in girls. Further research to determine the mechanisms associated with this relationship and underlying sex differences is warranted.

15.
Leadersh Health Serv (Bradf Engl) ; 31(2): 167-182, 2018 05 08.
Artículo en Inglés | MEDLINE | ID: mdl-29771225

RESUMEN

Purpose The purpose of this study was to explore inter-professional clinicians' perspectives on resident leadership in the context of inter-professional teams and to identify a definition for leadership in the clinical context. In 2015, CanMEDS changed the title of one of the core competencies from manager to leader. The shift in language was perceived by some as returning to traditional hierarchical and physician-dominant structures. The resulting uncertainty has resulted in a call to action to not only determine what physician leadership is but to also determine how to teach and assess it. Design/methodology/approach Focus groups and follow-up individual interviews were conducted with 23 inter-professional clinicians from three pediatric clinical service teams at a large, Canadian tertiary-level rehabilitation hospital. Qualitative thematic analysis was used to inductively analyze the data. Findings Data analysis resulted in one overarching theme: leadership is collaborative - and three related subthemes: leadership is shared; leadership is summative; and conceptualizations of leadership are shifting. Research limitations/implications Not all members of the three inter-professional teams were able to attend the focus group sessions because of scheduling conflicts. Participation of additional clinicians could have, therefore, affected the results of this study. The study was conducted locally at a single rehabilitation hospital, among Canadian pediatric clinicians, which highlights the need to explore conceptualization of leadership across different contexts. Practical implications There is an evident need to prepare physicians to be leaders in both their daily clinical and academic practices. Therefore, more concerted efforts are required to develop leadership skills among residents. The authors postulate that continued integration of various inter-professional disciplines during the early phases of training is essential to foster collaborative leadership and trust. Originality/value The results of this study suggest that inter-professional clinicians view clinical leadership as collaborative and fluid and determined by the fit between tasks and team member expertise. Mentorship is important for increasing the ability of resident physicians to develop collaborative leadership roles within teams. The authors propose a collaborative definition of clinical leadership based on the results of this study: a shared responsibility that involves facilitation of dialog; the integration of perspectives and expertise; and collaborative planning for the purpose of exceptional patient care.


Asunto(s)
Actitud del Personal de Salud , Competencia Clínica , Internado y Residencia , Relaciones Interprofesionales , Liderazgo , Grupo de Atención al Paciente , Pediatría/educación , Canadá , Conducta Cooperativa , Educación de Postgrado en Medicina , Femenino , Grupos Focales , Humanos , Entrevistas como Asunto , Masculino , Investigación Cualitativa
16.
Clin Rehabil ; 32(7): 954-966, 2018 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-29473440

RESUMEN

OBJECTIVES: The three objectives of this scoping review were to (1) identify key conceptual/theoretical frameworks and the extent to which they are used to inform goal setting related to rehabilitation goal setting with children with motor disabilities, (2) describe research that has evaluated goal setting processes and outcomes, and (3) summarize the purposes of goal setting described in paediatric rehabilitation literature. METHODS: The scoping review process described by Arksey and O'Malley was used to guide article selection and data extraction. RESULTS: A total of 62 articles were included in the final review. While the concept of family-centered care was well represented, theoretical frameworks specific to goal setting (i.e. goal setting theory described by Locke and Latham, mastery motivation, social cognitive, personal construct, and self-determination theories) were rarely addressed. No articles reviewed addressed prominent behavior change theory. With the exception of the description of tools specifically designed for use with children, the role of the child in the goal setting process was generally absent or not well described. Few studies ( n = 6) discussed the linkage between goals and intervention strategies explicitly. Only two studies in the review evaluated outcomes associated with goal setting. The primary purpose for goal setting identified in the literature was to develop goals that are meaningful to families ( n = 49). CONCLUSION: The results highlight significant gaps in the literature explicating a sound theoretical basis for goal setting in paediatric rehabilitation and research evaluating the effects of goal qualities and goal setting processes on the achievement of meaningful outcomes.


Asunto(s)
Niños con Discapacidad/rehabilitación , Objetivos , Motivación , Trastornos de la Destreza Motora/rehabilitación , Niño , Humanos , Autonomía Personal
17.
Disabil Rehabil ; 40(22): 2644-2649, 2018 11.
Artículo en Inglés | MEDLINE | ID: mdl-28738735

RESUMEN

PURPOSE: Cross-education is a neural phenomenon where strength of an untrained muscle improves after unilateral training of the opposite homologous muscle. It has been extensively studied in healthy populations and shows promise for post-stroke rehabilitation. The purpose of this study is to understand current post-stroke upper extremity rehabilitation practice; clinician's perspectives on cross-education and; facilitators and barriers to implementation of a cross-education intervention. MATERIALS AND METHODS: This qualitative study used an interpretive description framework. Twenty-three occupational therapists and two physiotherapists who worked with individuals with stroke were interviewed. Digital audio files were transcribed and then line-by-line coding for units of information was conducted by two investigators. A third investigator, who was not present during the interviews, participated in category development. RESULTS AND CONCLUSIONS: Cross-education is paradoxical yet promising was the primary theme. This theme was elucidated by three descriptive categories: (1) therapists worked in a forced-use paradigm; (2) there was gap in current practice for those with more severe impairments in arm function; and (3) cross-education used as an adjunct could be useful within current practice for specific patients. Therapists suggested that educational materials for clinicians, patients, and patient families would be essential to the success of cross-education to explain training the less affected limb. This study provides important foundational information about clinician perspectives that will facilitate future translational research in this area. Implications for rehabilitation Cross education, or training the stronger arm to increase strength in the weaker arm, is an intervention particularly appropriate for people with stroke who have severe impairments in arm strength. This intervention should not replace the forced use paradigm, but may be a useful adjunct in rehabilitation. Therapists perceived that education of patients, families, therapists, and doctors would be critical for cross education to be implemented successfully - as it is opposite the forced use paradigm that characterizes most of stroke rehabilitation.


Asunto(s)
Terapeutas Ocupacionales , Fisioterapeutas , Desarrollo de Personal , Rehabilitación de Accidente Cerebrovascular , Actitud del Personal de Salud , Femenino , Grupos Focales , Hemiplejía/rehabilitación , Humanos , Masculino
18.
Early Hum Dev ; 113: 120-128, 2017 10.
Artículo en Inglés | MEDLINE | ID: mdl-28711232

RESUMEN

Sleep deficiency has unique causes and implications for children with neonatal brain injury; contributing to the development or exacerbation of neurodevelopmental impairments and yet it is an underemphasized aspect of health and development. There is very little research evidence to guide the management of sleep disorders in children with cerebral palsy, a common neurodevelopmental disability of childhood. This paper is a comprehensive review and analysis of the literature regarding what is known about sleep quantity and quality in children with cerebral palsy. The specific implications for children with cerebral palsy are explored including the adverse effects of sleep deficiency on general child development, physical health and growth, and mental functioning. The consequences for the family are also discussed. Finally, the assessment and management of sleep problems are summarized to provide guidance to clinicians who work in neurodevelopmental medicine.


Asunto(s)
Parálisis Cerebral/fisiopatología , Desarrollo Infantil , Privación de Sueño/fisiopatología , Sueño , Parálisis Cerebral/complicaciones , Parálisis Cerebral/rehabilitación , Niño , Humanos , Rehabilitación Neurológica/métodos , Privación de Sueño/complicaciones , Privación de Sueño/prevención & control
19.
Teach Learn Med ; 29(4): 392-401, 2017.
Artículo en Inglés | MEDLINE | ID: mdl-28498034

RESUMEN

Phenomenon: As we move toward competency-based medical education, greater emphasis is being placed on assessing a more comprehensive skill set, including the ability to communicate and collaborate effectively in the workplace. Nonphysician members on interprofessional (IP) teams have valuable perspectives on actual resident performance and are often not adequately engaged in the provision of feedback to residents. Based on the educational theories of collaborative evaluation and social constructivism, this research examined the ability of IP clinicians to provide feedback to residents. The aim of this study was to examine IP clinicians' perceptions of their ability to provide formative feedback, through their observations and assessments of developmental pediatric residents, compared to physician supervisors on the rotation, and to qualitatively explore potential barriers to the feedback process from their perspective. APPROACH: This explanatory, sequential mixed-methods design study first examined which and how many of the CanMEDS Communicator and Collaborator training objectives (N = 40) were considered to be observable and assessable by IP clinicians and physicians. A comparison of the mean number of objectives that were observed and practically assessed by (a) each group (IP clinicians vs. physicians) and (b) clinical service teams during the core developmental pediatrics rotations, were examined using independent t tests. Second, a thematic qualitative analysis of focus groups was used to develop a contextual understanding of the factors that influenced this process. Data were analyzed using three levels of open coding and descriptive qualitative analysis techniques. FINDINGS: Physicians reported they could observe (M = 33.3, SD = 5.2, 83.3%) and assess (M = 31.5, SD = 7.3, 79%) a larger number of objectives compared to the IP clinician group (M = 24.7, SD = 8.6, 61.8% and M = 20.3, SD = 10.6, 51%, respectively). There were no differences between the clinical service teams (i.e., preschool/school-age and pediatric rehabilitation). The objective that was most observable and assessable by the IP clinicians was "Demonstrates a respectful attitude towards other colleagues and members of an interprofessional team." Four themes identified by the IP clinicians provided more in-depth qualitative information: (a) assessment requires more than simple observation, (b) assumptions and indirect observation influence assessment, (c) clinic culture and structure shapes observation and assessment, and (d) specific assessment criteria are required by IP clinicians. Insights: IP clinicians have the desire and ability to provide formative feedback to residents. Formalized processes with specific evaluation criteria would facilitate meaningful feedback from IP clinicians in the assessment of residents as they journey toward competence.


Asunto(s)
Competencia Clínica , Conducta Cooperativa , Internado y Residencia/organización & administración , Relaciones Interprofesionales , Grupo de Atención al Paciente/organización & administración , Actitud del Personal de Salud , Educación Basada en Competencias/métodos , Femenino , Humanos , Masculino
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